Wednesday, December 16, 2009

Today's Plan

We are going to stop the Diazepam when Mason spikes a fever to see what happens (cross your fingers - no seizures!) The Diazepam is causing him to be very lethargic.

They did rounds...so they are going to repeat a urine test and a chest x-ray today. The only thing that has remained high with all his blood tests is his CRP (I have no idea what that stands for). This means that he has some sort of inflammation. Because of it being Day 6 with fevers and inflammation still high, they now need to consult cardiology. We aren't sure if it will be Dr. Dyke that comes to see him or someone else...but they may do an echo.

Tomorrow they are going to do a blood draw for another blood count to check WBC, etc.

Dr. Koehn also stopped by. She is the one that made the decision to stop the diazepam. That means his only anti-seizure drugs are the Tegretol (Carbamazepine) & Keppra. She also said that we are going to hold off on the EEG and MRI until he is healthy. The MRI will be one month out (exactly 1 1/2 years since his last one) and the EEG will likely be in the next few weeks. If we were to do the EEG now, all it would show is that he is on meds that are affecting his brain electricity.

So more tests...and waiting...

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