Sunday, December 13, 2009

New Anti-Seizure Med

They put Mason on a new anti-seizure med...Keppra. He has been on Tegretol (Carbamazepine) since June of 2008...and with seizures popping up continuously this fall now, the on-call neurologist thinks that perhaps it isn't being as effective as it once was. The most likely side effect of Keppra is irritability...which is definitely not something we want...but we will watch him to see how he does on it. He is still getting the valium suspension drug every 8 hours and tylenol/ibuprofen regimen every 3 hours. The ibuprofen seems to be the one controlling his fever the best...as when it is time for the new dose...his fever starts climbing again.

Test results thus far:
WBC - Normal. This is extremely puzzling because his WBC shot up so high about 6 weeks ago and they attributed it to seizures. The seizures this time around are much more intense and haven't caused his WBC to budge at all. Also, whatever is causing his fever is probably viral and usually WBC would be up with that...right?

Tegretol level in blood - This could take a few days...but won't matter much now that they are switching him to Keppra.

Chest x-ray - haven't heard anything yet. We assume its fine but will check with docs in morning.

Urine test - no results yet.

The way his fever has been climbing back up every 5 hours...its not likely we'll be going home Sunday. In the morning I will need to make preparations for work and work out a schedule with Chris for being here with Mason. It's hard being stuck at a hospital without the same conveniences of home...but this is the best place we could be right now for our little tyke. I've got to say too: Gramma Barb is the most patient, loving Gramma that Mason could have. Chris and I will never be thankful enough for all her help in situations like this. Her nursing background is super helpful, especially when my/Chris's brains seem to stop working in high-stress situations.

We're all laying down to rest again...Gramma Barb is holding Mason, who slept for 1 1/2 hours, was up for just as long, is now sleeping again...

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