Special Needs Clinic #3

Whew! This has been a long day. We left home at 7 am and got home at 5 pm. We had PT, OT, Physical Medicine, Speech and Neurology today. PT and OT said that Mason has made 1-3 month gains since our last visit (July). We'll take it. Physical Medicine doc and therapists agree that Mason's hamstrings and heel cords have gotten tighter so we need to start using his knee immobilizer again at night. Also need to up the daily stretches. When we return to the clinic in 6 months, Mason will have a pelvic x-ray to see how his hips are developing. Also need to put hand splints on when Mason is napping to help stretch out his thumbs.

Ordered lots of equipment today: kid kart, new AFO's, stander, bath seat, rifton chair and high chair. We'll see what insurance covers. The AFO's will be ready in 3 weeks so we are going back to get them fitted. It was pretty cool, they took a cast of Mason's foot/ankle/leg, cut them off, will make a mold of his leg, and fit the AFO plastic around the mold. We even got to pick out a design for them. I let Chris pick with the agreement that I get to pick next time. Chris, of course, picked Camo. Camo goes with everything, right? At that time we will also see OT to see if we can get Mason fitted for a "loaner" kid kart that he will use until ours comes (hopefully soon!) I am going to give our insurance company hell this next couple weeks to make sure we get this stuff...because Mason is going to school in 9 months and we're going to need this stuff!!!

Mason's EEG was good, better than it was in January. Knock on Wood, but he hasn't had any seizures since December. Dr. Koehn's words exactly were "His EEG was more appropriate" which I'm assuming it means she saw less abnormalities since December. It also means his added Keppra drug is doing its job.

We will be going back to the Special Needs Clinic in 6 months to look at everything all over again and reassess. It sounds as if he'll get new AFO's each time as his feet grow.

Mason's heart is going great, according to Dr. Dyke from last Thursday's visit. Mason's brain is doing as well as it can right now. His development is okay..it's probably appropriate for him, but we're still going to continue to push him.

Mason is watching Mickey Mouse now...his reward for being such a sport today!