Yesterday we attended an adaptive bike rodeo in Marshfield. I have never seen Mason ride a bike, and Chris had only seen him on one once...the day prior at school when he stopped to update the summer school staff on Mason and show them his equipment...when he rode across the room on the school bike.
I'll let the video show you the amazing way Mason has the opportunity to be mobile...
(smiles) Yes! That's my kid! Moving!
We've attempted to get Mason mobile on a gait trainer, but he doesn't have the strength to support his body weight and move his legs at the same time. This bike is finally a way that he can break up some of that tone in his legs and be able to explore with us as a family.
The hard part is the cost. I told Chris that this event was great (and it really is) but leaving without that amazing piece of equipment and trying to figure out how you are going to afford it is, well, frustrating.
The bike will cost anywhere between $4500-$5500. The vendor gives 20% off pricing, making it between $3600 and $4400. We will receive the exact quote in the mail from the vendor based on the adaptations Mason needs (special harness, foot straps, etc.) The Children's Miracle Network will donate $1300. Chris and I are willing to pay $1000. We'll need to raise between $1300 & $2100. My best guess is $1700 (split down the middle).
So once this quote comes in, I will be working on ways to get this funding. We are on the waiting list for Marathon County Division of Long-Term Care Support, which may be able to assist. We were also told to contact our church and our local Lions Club. If any of our readers know of other sources that can help us out with even a small donation, send either Chris or I an email/text/facebook message!
Our new mission to start this June - Help Make Mason Mobile! :) Watch for more information!
We'll see what we can do.
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