So I got the funkiest call on Monday. Mason's cardiologist called to get our permission to have a PR rep from Marshfield Clinic meet with us to do a story on Mason. They were looking for a family that has utilized different pediatric services through the Marshfield Clinic system. We fit that bill exactly! We've utilized Cardiology, GI, Genetics, Neurology, Immunology, ENT, Speech, Special Needs Clinic, Physical and Occupational Therapy and Physical Medicine. Oh, I forgot Orthotics. :)
They will do a story on Mason, his syndrome, how we've used services, etc. It will be a picture and story featured in their Cattails newsletter - do any of you get that? I know I do - I think it comes out quarterly.
I'm not sure exactly when it will be featured. We're meeting with the PR guy on Tuesday and the picture will be taken later.
What a great way to bring awareness to VCFS!!!
This is awesome!!! Hopefully it will read by many. "Knowledge is hope"
ReplyDeleteThis is VERY exciting! What a great opportunity for others to learn about this syndrome and it's implications. PLUS, I think everyone should have the chance to see a picture of Mason. He has THE best smile of any 2 year old I know! IF there's an online version of the newsletter, let me know and I'll feature the link on my blog and fb (if that's okay with you).
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