Who wants to go to Utah?!

I do! I do!

I got an email today...a notification that the VCFSEF was now a group added on facebook. (Velo-Cardio-Facial Syndrome Educational Foundation) Obviously, I had to check it out. I went out there, and found out from the site that next year's conference will take place from July 16-18 in Salt Lake City, Utah. We're going. Period. Now to find some airline tickets...

Chris and I have been talking about going to next year's conference for awhile now. And by talking, I mean me TELLING him that we should go. The conference in 2008 that Gramma Mrdutt and I attended was overwhelming to say the least. It was in Detroit and we decided to drive there and back over the 3 day weekend. It was approximately an 8 hour drive.

Most of the conference topics were pretty boring, lots of medical lingo about genetics, etc. But, during the breakfast, lunch, & dinner periods, they had group meetings set up with professionals and each attendee could ask personal questions about their family member with VCFS. Mason was only 6 months and was pre-heart surgery, so we didn't have a lot of questions yet. However, even the small things we learned, we knew would be beneficial in the future. It was my first and only exposure to other kids with VCFS. Some families brought their kids and the kids had their own agenda for the weekend. I know I have mentioned the "look" that VCFS kids have and seeing other kids with it makes me look at Mason a little differently. For those of you that have never seen another VCFS kid, it's hard to know what I mean. VCFS kids are prone to have wider set eyes and broad noses. Once you see 5 or 6 of them, you start to see it. Mason eyes are wider set but I still think he is too young to have the "VCFS look". For you facebook members, go add yourself as a member on Facebook. There is a picture of another VCFS boy out there you can use as a reference. Naturally, I put Mason's picture out there too. :)

It's going to be a busy year, and I'm not sure I will have enough vacation time at work for all these events but too bad...I'm going. Mason and Chris are coming with me.

So July 16th, 2010 it is. Who else wants to go?